Saturday, January 31, 2009

Leah's home...yahoo!!!!

Leah enjoying a little wiggles action.  She's not used to the idea she can't just walk around anywhere she wants.  She can't eat either.  Tube feedings only.  But she is so HAPPY to be at home.  She's much stronger than she was the last time she got so sick.  Thank heavens since my back is much worse than it was then.  Ha...

This is last night after she got home and got a bath and a shampoo.  Chillin in the bed with her radio.  I bought her a new VCR/DVD player since she busted up the one that was in this bedroom.  I got her a new Wiggles DVD and the movie Madagascar.  Boy was she excited.

Here's Leah just contemplating having her radio back after 3 weeks in the hospital.  She was excited but very exhausted. 

Friday, January 30, 2009

Aw Leah









I couldn't help but think these two photos explain Leah! She gets SO excited when she sees her Handsome nephews! Leah is SO cute (and happy) when she is around the little ones.. :)

Thursday, January 29, 2009

Not so fast now...

Got a call from the doctor today.  They wanted to send Leah home and then have me bring her back to do another modified barium swallow study to determine what sort of a feeding regimen she should be on.  I said no.  I learned that from little Caleb (more on that in a couple of sentences).  I told the doctor they needed to keep Leah and do the test before she comes home since transporting her is going to be fairly difficult until she gets some of her strength back and also I want to know what their feeding recommendation is before she comes home and we try to kill her by feeding her improperly.  So the upshot of that whole exchange is that she will stay in the hospital until after the swallow study is completed. Once again I will keep you all posted. Oh, and now an explanation of the "I said no" statement. When Ian and Melissa and the boys were here at the first of the year I asked little Caleb to do something (don't remember what) and he said with absolutely no malice "I said no".  So I said "Oh, well, I said yes" and he said just as sweet as can be "OK". Very cute don't you think?  When I typed that sentence it made me think of him.  Totally unbiased in saying I have the cutest, smartest, most wonderful grandsons in the whole universe... 

Tuesday, January 27, 2009

She's coming home...

Egads!!! I talked to the doctor and the discharge coordinator today and it looks like Leah will come home Thursday. She will need physical therapy and who knows what else but at least she will be home. We will have to rearrange things around here since she won't be able to maneuver the stairs and I'm sure there will be other adjustments. Kind of nervous and glad at the same time. I guess we've been through so much with Leah what's one more thing right???

Saturday, January 24, 2009

More progress

Leah is out of ICU and continuing to improve.  She's lost a lot of weight and strength but she's slowly returning to her ornery self.  

The saga continues...

Leah is off the ventilator and seems to be holding her own in terms of her breathing.  She's very weak but still her same spicy self.  I'll keep you posted...

Friday, January 23, 2009

Engaged

Well i just got all of my photos uploaded onto my computer, finally! And i thought maybe i should put up a better picture of Jesse and me! So here it is.. Aww. Isn't he handsome??! Hah Well, we are getting married in JUNE! So put it on the calendar!

Well...

It looks like Leah is going to survive this time. She will be very weakened again like last time. She's lost a lot of weight but she is more alert than she has been. That is most likely due to the fact that they are cutting back her sedation in an attempt to see if she can breath on her own. In the next couple of days they will attempt to withdraw the breathing tube and take her off the ventilator without reinserting her tracheostomy. This is the most hopeful scenario. It is possible they will have to immediately reinsert the breathing tube and then move to replacing the tracheostomy. It just remains to be seen. Leah will get sick again and she will continue to deteriorate that is a fact the only mystery is when she will get another serious pneumonia. Thank you all for your prayers and well wishes. In a moment of weakness while Leah was watching PBS kids and enjoying of all things a dog show I told her we would get her a dog if she came home. Now I've made a promise of a dog to a dying retarded girl. I guess that's a promise I can't break so there will be a little yappy dog in our future. My friend Jacquie is all fired up and has a breed of dog all picked out. The little yappy thing isn't supposed to get over 7 pounds. Oh yeah...another adventure. Louise and a dog. I'm picturing it right now as I type...getting wistful.

Tuesday, January 20, 2009

It's a new day in America

We have a new president and change is in the air.  Leah even made a very small change for the better.  Life is good...

Saturday, January 17, 2009

Leah update

Well Leah continues in the ICU. She's not better but she's also not worse so that's some good news. The nursing staff got her out of bed yesterday and sat her in a chair. They also but in a pic line which they can use long term for blood draws an so forth. Nik and Jessika arrived yesterday and we went to see Leah. She looks terrible and it was pretty upsetting for them to see her that way. I'm so tough nothing bothers me. Ha... I'm almost 100% sure she will make it but the truth is it's in the Lords hands and we will accept whatever His will for Leah is. I'd post a picture but it would not be pretty so we can all just think of Leah smiling with baby Christian. I don't think baby Christian is smiling in this picture but he does smile...just not when Leah is holding him.

Wednesday, January 14, 2009

Baby Leah

I just love this photo of Leah. She LOVES the little grandchildren. When I asked her if she wanted to hold the baby she was so happy. If Leah dies this will be the photo on her memorial program since it catches the essence of our baby Leah. Leah continues in the ICU. She sort of goes up and down and is heavily sedated. Not much change in her pneumonia but at least it isn't getting worse. I know this is not a very cheery post but I thought it might be the easiest way to let you all know how Leah is doing. It's going to be a long ride again this time. Not the quick resolution I was hoping for. Oh well I guess it's not all about what I was hoping for. I'll keep you all posted. Thanks for the prayers and thoughts.

Monday, January 5, 2009

A Day with Trains

We had a wonderful time visiting the Hulewskys this past New Year's Eve week. Julian, Caleb and Liam visited the train museum and loved looking and touching the trains on display. They had finished up the outing with a well earned snack. Thanks for hosting us everyone! We look forward to our next visit.



Thursday, January 1, 2009

Rebecca and baby Ashton

Rebecca delivered Ashton yesterday, December 31st around 5:30pm. He is 6lbs 7oz and 19 1/2 inches. I'll give a better update in a little while.